A Tribute to Peter Grainger

It is with great sadness that we have to announce that Peter passed away peacefully, with his family by his side, on 17.01.18 at the Garden House Hospice Care in Letchworth.

Peter was a larger than life character, who was an eternal optimist. As one of the original founders of the PolyPeople patient support group he brought his energy, enthusiasm and sense of humour to all that the organisation did. It was under his leadership as the first Chair of PolyPeople that we became established in partnership with St Mark’s Hospital and the Polyposis Registry. His ‘performances’ at the annual information day organised by the Registry always brought some light humour to the proceedings! His laughter was infectious, and if you’ve ever heard his ‘most embarrassing moment’ story (involving a double-decker bus) you’re probably smiling right now!

In his heart, he was so passionate about bringing support to anyone affected by a polyposis diagnosis. As recently as November 2017, when he was dealing with his own illness, he still found time to exchange emails with someone who had received a polyposis diagnosis and who found themselves worrying about their future. His reflection on that exchange was, “What I find difficult is removing the fear people can have. There has to be a way of doing this. People have been given a life to live. Get on and live it. Why on earth not?

Peter’s involvement with PolyPeople reflected that mantra – get on and live it – and he did so until his final days. He remains a shining example to us all. We have many special memories and so much to thank him for. He will be badly missed, but we will ensure PolyPeople continues to reflect his desire to provide support.

Rest in peace Peter – and “thank you, thank you, thank you” from your PolyPeople friends!

Below are a couple of links to articles written by Peter, sharing more about his personal experience of Familial Adenomatous Polyposis (FAP) but also how he continued to embrace life:


Bringing new hope to people with genetic diseases

Genome Project Launch


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Also here is a link to St Marks Polyposis Registry

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