* Onset of symptoms age 16 with up to 13 toilet visits a day!
* Social life, e.g. sleepovers/trips affected as I worried about the loo.
* Various prescriptions for IBS!
* Couldn’t continue trying to live with this. Referred for more tests.
* 1990 Will never forget seeing consultant with mum for results.
* Age 18 – FAP diagnosis. Told that I needed surgery or 99.99% risk of bowel cancer by 40.
* Really shocked – I burst into tears and ran out followed by Mum, also in tears. We just hugged in the car park.
* Fortunately, had contact with local lady who had recently had the same surgery, which was invaluable, as I was feeling scared and vulnerable.
* Two weeks later – single stage restorative proctocolectomy
* GP visited to apologise. I wonder if he had even heard of FAP!
* On the whole I lead a normal, healthy life and eat well.
* Alarmed in 2004 when told my follow-up could be relatively conservative and could possibly be stopped altogether! So…
* 2007 transferred to St Mark’s safe hands for annual follow ups!
* Taken part in three research projects. One of particular benefit to me and has led to a new prescribed product called Glucodrate, (restores my salt and water balance to normal).
* Involved with PolyPeople since 2009. Being able to talk to someone who is living with the condition can be so helpful.
* If I could change one thing related to FAP this would have to be getting rid of the windy and malodorous toilet episodes!